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Tristan

@phenylketonurianotebook@pkutalk.com
mastodon 4.7.3
  • Open on pkutalk.com

Gars du Lac St-Jean au #Québec, #Canada.
I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale.
Trying to learn #Linux, je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓

Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU.
Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.

0 Followers
0 Following
27 Posts
Joined September 14, 2025
Phenylketonuria | Phénylcétonurie:
https://www.phenylcetonurie.ca
TechnoTrust:
https://technotrust.substack.com/
Languages:
EN / FR
Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 6mo ago

50g en équivalent de protéines, faible en glucides, goût chocolat caramel. C'est ma fondation pour la journée. Nouvel article sur le blogue avec la recette et la science derrière tout ça.
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50g of protein equivalent, low carbs, chocolate caramel flavor. It's my foundation for the day. New article on the blog with the recipe and the science behind it.

#Phénylcétonurie #Phenylketonuria

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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago

Nouveaux traitements prometteurs pour la #phénylcétonurie!
*
Promising new treatments for #phenylketonuria!

https://open.substack.com/pub/pcublogue/p/deux-nouvelles-qui-donnent-de-lespoir

open.substack.com
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Replying to
@soheb@pkutalk.com ok thanks for the heads up! But you just triggered my curiosity lol
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 5mo ago
Replying to
@soheb@pkutalk.com Love to switch off my brain from times to times lol
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 5mo ago
Replying to
@soheb@pkutalk.com OH! Maybe I will go watch it then :P
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Replying to
Reply test
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 5mo ago
Replying to
@soheb@pkutalk.com @caoimhin@mastodon.online I totally get that and understand your reflection (as I went through the same, many times 😅). I keep managing my platforms, but as far as possible from Meta (using mainly Meta business to post and reply) and pushing everyone as much as possible on Substack which I believe is a lot more interesting since it is filled with long form, in-depth articles (which is also much better for the brain).
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
Hello #Linux world. 😊 Anyone tried #Asahi on a M2 Mac? Do you have any comment or suggestion before I try? Thank you!
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 6mo ago

Them: Oh you got phenylketonuria, is that serious?
Me: [explaining for 15 minutes]
Them: oh okay it's like an allergy.
*
Eux : Ah, tu as la phénylcétonurie, c'est grave?
Moi : [qui explique pendant 15 minutes]
Eux : Ah ok c'est comme une allergie.

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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago

"We are forever elsewhere." These words are heavy with meaning and should make everyone think. 😬

I am reading "The Anxious Generation" by social psychologist Jonathan Haidt, in which he examines the mental health crisis affecting teenagers. It is a relentless investigation that shows how social media (especially short videos) and smartphones threaten the mental health of young people.

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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Replying to
@soheb I still have village on my Mac, but found it too stressful when I started lol But I will try again because I really want to try Requiem as well :P
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Je commence à m'intéresser à un aspect hors du commun que je trouve pertinent avec la #phénylcétonurie : la tentation. Ça vous intéresserait une vidéo sur le sujet? I'm starting to take an interest in an unusual aspect that I find relevant to #phenylketonuria: temptation. Would you be interested in a video on the subject?
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
J’ai ouïe dire que l’application @qlub@qlub.social est disponible, mais je ne la trouve pas et je suis curieux 👀 😁 Y a-t-il un lien direct? #Qlub @meadmin@qlub.social
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
Replying to on qlub.social
@meadmin@qlub.social Cool merci! 🤩 Je regarde ça 🙌🏻
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago

Oh, interesting. 🤔

#GlobalHealth #Sleep

https://ground.news/article/study-pink-noise-reduces-rem-sleep-challenges-sleep-aid-claims_013f06

ground.news
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
New treatment, new hope. But it is at a very early stage. 👉 https://open.substack.com/pub/pcublogue/p/un-nouveau-signal-du-cote-de-la-recherche #Phenylketonuria #Phenylcetonurie
Un nouveau signal du côté de la recherche sur la phénylcétonurie
open.substack.com

Un nouveau signal du côté de la recherche sur la phénylcétonurie

A new signal in phenylketonuria research

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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
Replying to
@soheb@pkutalk.com lol
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
@JulieBrowny@reseau.libresocial.quebec Je dirais oui 😜
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
@JulieBrowny@reseau.libresocial.quebec Y'a même un 7 chanceux 😛
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
@soheb@pkutalk.com 😂😂
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
Yep 😅 #AI
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Replying to
Perfect, thanks :)
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
Replying to on floss.social
@stefank@floss.social Cool! I just did a few researches, and I saw that it's dual boot only?
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 8mo ago
Replying to on pkutalk.com
@soheb@pkutalk.com https://www.instagram.com/reel/DTrQtKqDAib/ Just for you lol
instagram.com
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Replying to on qlub.social
Cool! 🙌🏻
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Open post
Tristan @phenylketonurianotebook@pkutalk.com
· 7mo ago
Replying to on qlub.social
Bonne journée!
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