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Johnny Profane Âû

@johnnyprofane1@neurodifferent.me
mastodon 4.2.13
  • Open on neurodifferent.me

One Voice. Raw. Real. Fiercely Neurodivergent.

🎤 Free Podcast https://johnnyprofaneknapp.substack.com/podcast

✍️ https://linktr.ee/johnnyprofane1
#ActuallyAutistic ♣️

I’m an #AutisticElder. In my 70s. Born before autism was invented…

Been a meditation teacher, cult member, magazine publisher, ad agency owner, non-profit activist, 3-time grad student, 3-time husband, homeless, mental health counselor, substance abuse counselor, cult counselor, homeless, fast-food clerk, Pretend Rock Star, homeless…

I offer my life...

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11 Posts
Joined November 25, 2022
Newsletter:
https://johnnyprofaneknapp.substack.com/
Video:
https://www.youtube.com/@AutisticAFOL
Podcast:
https://johnnyprofaneknapp.substack.com/podcast
Facebook, LinkedIn, etc.:
https://linktr.ee/johnnyprofane1
Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago

"We autistics are all abled... differently. Even as we all are autistic.

Maybe…

I’m on the curve of all shades of non-speakers.
From the silence of the intellectually challenged, non-verbally intelligent, burnt out, and situationally mute.
To the hyper-articulation of our neurodivergent academics… and poets.

But we’re learning that nearly all of us communicate… in our ways.
My actions. Even my meltdowns... and my injuries. Screams... when words fail.

If others will only listen. Before I'm pushed past my limits.

Maybe…

We can all live autistically out loud… in our ways.

Begging for accommodations?

I feel like I'm panhandling on the street. Tourists have all the power. All I can do is perform for their pleasure.

Walk away.

Freedom is never given. It is lived. Out loud.

Cuz i always deserved it."

These are raw thoughts I'm entertaining.

I could use your input.

#neurodivergent

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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago

#6 is my fave.

Been getting a lot of "Hey, how are you today, {Johnny}" messages from advocates & experts on autism lately.

Which inspired these 7 tips for folks reaching out to someone... like me.

Anybody else getting these? I don't suspect AI.

I suspect money.

#neurodivergent

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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago

Just one #AutisticElder's thought...

Honor your limits.
Your senses.
Your feelings.
Your social circle.
Your life.

Honor your limits.
Not someone else's fantasy of
What you should be capable of.

If something...
Anything...
Is uncomfortable?
Don't hide from that.
Honor your limits.

Icm gonna go walk my dogs. Maybe bake some bread for the Men's Shelter...

#Neurodivergent

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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago

Fair warning... this one's a little rawer than usual for me. A comet, a cult, and a family card game in an ice storm. Family trauma, religious themes, substances, a few sharp words. New piece on the patterns I couldn't name until now.

https://autisticaf.wordpress.com/2026/05/09/family-god-vodka-neat-my-autistic-elders-truth/

autisticaf.wordpress.com
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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago
Replying to
@btaroli@federate.social sending love. Another of poetry and such in a month or so. I can send the PDF of you give me the email.
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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 44mo ago

"Rediscovering Autistic Joy: My 4 Easy, SHAMELESS Ways as an Autistic Adult'

For my #TikTok friends...

@actuallyautistic@a.gup.pe @actuallyadhd@a.gup.pe

#ActuallyAutistic #Autistic #ADHD #AuDHD #LateDiagnosis #LateDX #AusticAdult #Video
https://www.tiktok.com/t/ZTRnFxan5/

tiktok.com
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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 44mo ago
Replying to
@jeano_appleseed@mas.to @actuallyautistic@a.gup.pe @actuallyadhd@a.gup.pe Thank YOU sir! Got another one coming later today... "My Adult Autistic Super Powers? Vanish like Schrödinger’s Weird Cat"
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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago

I just burned a professional bridge...

and I feel fine.

Altho burning down a Bridge to Nowhere may not exactly demonstrate my neurodivergent courage... lol

Another guilt trip from a disorganized advocacy group asking me to speak for free to provide them an "inclusion" fig leaf... and not even offering the clarity I requested... months ago?

imagine that. An advocacy group for disabled folks... not working with my #neurodivergent needs. To accomplish theirs...

I can live with out that noize.

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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 5mo ago

Autism Acceptance vs Autism Awareness?

Angels dancing on heads of pins?

I'm more into Autism Equity. I don't want someone's condescending acceptance of me.

I want what everyone wants. As free a life as anyone else. And freedom without equity doesn't seem remotely possible for me.

Acceptance? Awareness? I don't need to salve anyone's feelings or self image.

In the words of Bladerunner... I want more life... f***er.

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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 6mo ago

"What if this is the last walk I can ever give Gussie… give Stripey?"

That got me out of my chair Wednesday night. The night of Iranian Crisis countdown.

64 years of autistic trauma, a Catholic schoolyard, a recurring nightmare.

#ActuallyAutistic #IranWar

https://open.substack.com/pub/johnnyprofaneknapp/p/the-night-they-held-their-crisis

open.substack.com
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Open post
Johnny Profane Âû @johnnyprofane1@neurodifferent.me
· 6mo ago

April doesn't have to be the cruelest month for #ActuallyAutistic folks.

We could #OccupyApril. Freaking OWN it.

Case in point... My autistic autonomy.

I don't need my agenda 100% of the time. But I DO need 100% of my attention devoted to my agenda... some time...

Every day.

#AutismAwarenessMonth

You got anything on your autistic chest you want the World to be aware of?

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